Improve Caregiver Quality of Life with Yoga

“Caring for someone with dementia is made up of an infinite number of small moments where we can go either way, adding more stress or bringing more ease. The problem when we are not mindful is our words come out and our actions unfold too quickly for us to have a chance to choose the wisest, most beneficial route. Mindfulness practice slows us down and takes some of the edge off our reactive tendencies.” – Marguerite Manteau-Rao

 

Caregiving for dementia patients is a daunting and all too frequent task. It is estimated that over 15 million Americans are dementia caregivers. It is an intense experience that can go on for four to eight years with increasing responsibilities as the loved one deteriorates. In the last year, 59% of the caregivers report that they are effectively on duty 24/7. It is sad that 72% report relief when their loved one passes away.

 

This long and difficult process can take a major toll on the caregiver. On a practical level they frequently experience financial problems from lost income and have their careers interrupted. But, the greatest problems occur due to the intense levels of stress experienced by the caregivers. Around 2/3rd of caregivers report high emotional stress and over 1/3rd report high physical stress. This stress, in turn can have emotional consequences with over 1/3rd of caregivers reporting depression and many report family problems. In addition, dementia caregivers are more likely to have physical issues such as high levels of stress hormones, reduced immune function, increased hypertension, and coronary heart disease. Needless to say caregivers need care for themselves.

 

Reducing stress is very important for dementia caregivers. Stress not only jeopardizes their own health but also the quality of care they provide for their loved ones. Since mindfulness training has been shown to be effective in reducing both the psychological and physical responses to stress (see http://contemplative-studies.org/wp/index.php/category/research-news/stress/), it would seem be potentially useful for the relief of caregiver stress. Indeed, mindfulness training has been shown to reduce stress and depression, improve the quality of caregiving, and improve the quality of life for the caregiver (see http://contemplative-studies.org/wp/index.php/category/research-news/caregiving/). Hence, it would seem reasonable to further explore mindfulness practices to care for the caregiver.

 

In today’s Research News article “Yoga and compassion meditation program improve quality of life and self-compassion in family caregivers of Alzheimer’s disease patients: A randomized controlled trial”

https://www.facebook.com/ContemplativeStudiesCenter/photos/a.628903887133541.1073741828.627681673922429/1170247206332537/?type=3&theater

Danucalov and colleagues applied an 8-week program of yoga and compassion meditation to a group of female Alzheimer’s caregivers and compared their response to those of a wait-list control group. At the end of yoga and compassion meditation training in comparison to before training and to the control group, the yoga group reported significant improvements in their quality of life including physical, psychological, environmental, and social domains. They showed increased mindfulness, improved vitality both immediately and in general, and increased self-compassion and self-kindness.

 

These findings are remarkable and potentially important. Yoga and compassion meditation training markedly improved the psychological and physical conditions for the caregivers producing a major improvement in quality of life. Training also increased their vitality which is critical given the intense fatigue that the caregiving can produce. How this practice might produce these benefits was not explored. But, the documented ability of yoga practice in reducing stress responses would seem a likely explanation. In addition, the compassion meditation may be a useful component as Loving Kindness Meditation has been shown to improve self-compassion and kindness toward others (see http://contemplative-studies.org/wp/index.php/category/contemplative-practice/loving-kindness/).

 

Regardless of the explanation, it appears clear that mindfulness training is effective in improving the physical and psychological problems experienced by dementia caregivers.

 

So, improve caregiver quality of life with yoga.

 

“Many of us follow the commandment ‘Love One Another.’ When it relates to caregiving, we must love one another with boundaries. We must acknowledge that we are included in the ‘Love One Another.” ― Peggi Speers

 

CMCS – Center for Mindfulness and Contemplative Studies

 

Improve MS Quality of Life with Mindfulness

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“Multiple sclerosis (MS) can be an overwhelming challenge. One day you can feel strong and resilient, but the next day you can feel helpless and isolated. On these days, getting an extra push or boost from others just like you can make all the difference. ‘A positive attitude is the best medicine.’” – MS patient Lorri Lowe Peterson

“Multiple sclerosis (MS) is the most widespread disabling neurological condition of young adults around the world. more than 400,000 people in the United States and about 2.5 million people around the world have MS. About 200 new cases are diagnosed each week in the United States. The most common early symptoms of MS are: fatigue vision problems tingling and numbness vertigo and dizziness muscle weakness and spasms problems with balance and coordination.” – Healthline http://www.healthline.com/health/multiple-sclerosis/facts-statistics-infographic.

 

MS is most commonly diagnosed in people between the ages of 20 and 50 years with an average age between 30 and 35 years.  There is no cure for multiple sclerosis.  There are a number of approved medications that are used to treat MS but are designed to lessen frequency of relapses and slow the progression of the disease, but they don’t address individual symptoms. MS is not fatal with MS patients having about the same life expectancy as the general population. Hence, most MS sufferers have to live with the disease for many years. So, quality of life becomes a major issue. There is a thus a critical need for safe and effective methods to help relieve the symptoms of MS and improve quality of life.

 

Quality of life with MS is affected by fatigue, cognitive decrements, physical impairment, depression, and poor sleep quality. But, depressive symptoms are the most problematic with clinically significant depression present in 50% of MS sufferers. Since mindfulness has been previously shown to improve depression (see http://contemplative-studies.org/wp/index.php/category/research-news/depression/) sleep quality (see http://contemplative-studies.org/wp/index.php/2015/07/17/mindfulness-is-a-snooze/), cognitive impairments (see http://contemplative-studies.org/wp/index.php/category/research-news/cognition/), and emotion regulation (see http://contemplative-studies.org/wp/index.php/category/research-news/emotions/, it would seem likely that mindfulness would affect the quality of life in MS patients.

 

In today’s Research News article “Examining trait mindfulness, emotion dysregulation, and quality of life in multiple sclerosis”

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Schirda and colleagues investigated the relationship of trait mindfulness with the quality of life and its associated symptoms in MS patients. They found that the higher the levels of trait mindfulness the lower the levels of depression and emotion dysregulation and the higher the quality of life in the patients. They also found that the reduction in emotion dysregulation was partially responsible for the positive relationship between mindfulness and quality of life. In addition, the higher the depression level the larger the impact of mindfulness’ association with emotion dysregulation on quality of life.

 

So, as predicted, mindfulness played an important role in mitigating the effects of MS on quality of life and its associated symptoms. These relationships in MS patients parallel the effects of mindfulness on healthy individuals and so would seem to be universal regardless of the disease state. That emotion regulation appears to be central is very interesting. Mindfulness is known to allow the individual to fully experience emotions but to respond to them in a positive and constructive way. The results of the study then suggest that this may be the critical effect of mindfulness for the patient to experience a high quality of life

 

It should be kept in mind that Schirda and colleagues’ study did not manipulate mindfulness, rather simply looking at existing levels of trait mindfulness and their relationships with quality of life. Hence, it can’t be concluded that mindfulness causes quality of life improvements in MS. For example, it could be that people who have a high quality of life with MS become more mindful. It will take future manipulative research to establish mindfulness’ effectiveness in treating MS patients.

 

But, we can tentatively recommend to improve MS quality of life with mindfulness.

 

“I want America to know that you can still have a full, exciting and productive life even if you or your loved one is battling a debilitating, chronic disease such as MS.” – Michaele Salahi

 

CMCS – Center for Mindfulness and Contemplative Studies